Neutropenia is not a well-known disease and there’s only one network that conducts research for a cure.
‘There’s no awareness month, there’s no ribbon, there’s nothing. It’s just us moms trying to get the story out there and say please can you help us,” said Arnold (the mother of a Neutropenia child) While most of the people who are diagnosed with neutropenia are young, it’s a disease that can go un-noticed, even by the doctors, or its risks can be ignored.
Luckily Arnold found a doctor who took the condition seriously and, in turn, saved her child from unnecessary risk to its life. ‘I don’t really want to imagine what it would’ve been like without that diagnosis, because it could’ve been life or death for him.”
A blood drive to offer support for children with neutropenia will be held October 21st Ottumwa, Iowa in honor of Ryder and others affected by the disease. The Neutro Heroes blood drive and Halloween Bash will be held at the Ottumwa Knights of Columbus hall from four to seven pm next Tuesday, October 21, 2013.
Learn more at KTVO
If you cannot make the blood drive, please sign the petition to help Ariana-Leilani, who also suffers from Severe Chronic Neutropenia.