Out of concern for Ariana-Leilani, in January 2011 Dr. Dale wrote a letter to the US State Department and the German Embassy urging that immediate action be taken to avoid unnecessary risk to Ariana-Leilani. Dr. Dale is a co-director of the Severe Chronic Neutropenia International Registry, and an international leader in the field of diagnosis and treatment of this rare condition. Dr. Dale has found there is a large misunderstanding of the medical community — leading to mistreatment and misdiagnosis. The hidden dangers of SCN are explained in his January 2011 letter — namely, the “normal” symptoms of infection often do not appear and, thus, do not warn that fatal infection quickly spreading within the SCN sufferer’s body.
Here is a video produced by SCNIR to educate the medical community and others on this rare condition.
Neutrophils: Defenders from Infection from Audrey Anna Bolyard on Vimeo.
Dr. David C. Dale’s talk on Severe Chronic Neutropenia in February 2011 at the University of Washington.
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