Children the world over are neglected and abused in silence.
In the case of Ariana-Leilani King-Pfeiffer, a ten-year-old dual German-American citizen, the child’s father is denying her access to medication for the rare and life-threatening condition Severe Chronic Neutropenia (SCN). Yet the circumstances of her abuse go much deeper.
On Sept. 11 her dire circumstances were discussed during the appropriately titled “Saving Ariana-Leilani—when all USA Protection Systems Failed” on the blog talk radio show “Missing and Exploited” hosted by sex-trafficking advocate Glendine Grant.
“Together we are going to fight this,” Grant said at the start of the show.
Those involved in the discussion included Dr. Ariel King, Ariana-Leilani’s mother; Connie Valentine, co-founder of California Protective Parents Association; Jessica Burnham, media consultant for the Save Ariana-Leilani Coalition; Dara Carlin, president of Breaking the Silence; Roy Morris, pro bono public interest and human rights attorney; and the courageous mother of a 3-year-old son with Severe Chronic Neutropenia who we will be calling “Amanda” for the sake of anonymity.
“I am very grateful to speak, not just about my daughter Ariana-Leilani, but all children who find themselves in a Bermuda Triangle, of not getting whatever they need to survive and live,” King said.
She proceeded to explain that SCN, the condition her daughter has along with only one in one million others worldwide, can be acquired through chemotherapy treatment, from a viral infection, an autoimmune response and some individuals are born with the condition.
However, Ariana-Leilani showed no signs of illness until age five, when she began to have constant colds, flus, and runny noses.
“With some prompting from some physicians who reported her issue to Child Protective Services, Child Protective Services then demanded that she be taken to a hematologist/oncologist,” King said.
Within one year she had full testing, minus a toxicology exam or urinalyses, which she has still not received despite countless requests. After undergoing a bone marrow aspiration it was clear that her body was not producing neutrophils, which are what fight everyday infections.
In fact, her body was actively destroying her neutrophils. This usually only occurs if someone has undergone chemotherapy, had an autoimmune response, or contracted HIV/AIDS. To date, these possibilities have been ruled out in the case of Ariana-Leilani.
Based on Ariana-Leilani’s medical records Dr. Karl H. Welte, Co-director of the Severe Chronic Neutropenia International Registry (SCNIR) believes her condition has likely been “induced by toxic agents”—meaning someone is purposely introducing harmful drugs into the child’s system.
Read more at: http://saveariana.tumblr.com/post/32892494388/saving-ariana-leilani
Learn More at: Innocense in Danger