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Celebrate Ariana-Leilani’s 10th Birthday

May7

Join the celebration.     Through shear luck, Ariana-Leilani has lived with Severe Chronic Neutropenia to her 10th Birthday.

Celebrate by signing her petition to get life saving medicine.

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Over 128 Countries Support Ariana-Leilani’s Right to Health

Mar12
Ariana-Leilani Supporters All Over the World

Ariana-Leilani Supporters All Over the World

Join them…..before it is too late to help her…please!

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GATA2 mutations in patients with mild chronic neutropenia evolving to MonoMac syndrome, myelodysplasia, and acute myeloid leukemia

Feb5

GATA2 has been identified as a new predisposing gene for familial AML/MDS.  In this present study, the author’s describe the initial identification by exome sequencing of GATA2 mutation in a mother and her 3 children associated with a prior history of chronic mild neutropenia evolving to AML and/or MDS. Subsequent analysis of the French Severe Chronic Neutropenia Registry allowed the identification of 10 additional patients with GATA2 mutations in 6 pedigrees with unexplained mild neutropenia in at least 1 patient of the pedigree.  The frequent evolution to MDS and AML of patients with GATA2 mutations reveals the importance of screening for this mutation in chronic neutropenia, especially when associated with monocytopenia because of frequent hematopoietic transformation, variable clinical expression at onset, and the need of aggressive strategy therapy in patients with poor clinical outcome.

Read more: GATA2 mutations in patients with mild chronic neutropenia 

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Neulasta significantly reduced the incidence of febrile neutropenia,

Jan29

Neulasta significantly reduced the incidence of febrile neutropenia, which is low white blood cell count combined with fever. The drug more than halved the percent of chemotherapy patients contracting grade 3 or 4 febrile neutropenia as compared to a placebo group, the company said, cutting the incidence from 5.7% to 2.4%.

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ABC Robin Roberts BMA Test Show No Abnormalities After Treatment

Jan25

Robin Roberts announced plans to return to the show. Roberts announced that her most recent Bone Marrow Aspirations (BMA) tests following the bone marrow transplant she underwent in September, showed no abnormalities, meaning she can begin the process of returning to “GMA.”

Roberts underwent a bone marrow transplant to treat myelodysplastic syndrome or MDS, a rare blood disorder that affects the bone marrow. Roberts first announced her diagnosis on “GMA” in June and has been on medical leave from “GMA” since Aug. 30.

Ariana-Leilani also has a rare blood disorder with abnormalities in her BMA tests, but she is being denied treatment for Severe Chronic Neutropenia.

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Georgetown University Hospital Has History of Involvement with CIA Drug Experimentation

Jan24

Central Intelligence Agency Seal

A long forgotten 1977 article in the New York times, reveals that the Central Intelligence Agency partnered with institutions, including Georgetown University Hospital, to test drugs on unwitting patients.  The CIA even contributed 375,000 towards construction of a GUH building.    The relationship was exposed through efforts of Senator Ted Kennedy of Massachusetts.

Georgetown University is also the school which the lawyer who is fighting to prevent Ariana-Leilani from getting a second opinion graduated, and also that of his own father.  A position at Georgetown University was used as cover for the father when he was in the CIA, as highlighted in his book, King’s Counsel

Read More: CIA Behavior Control Studies Reported in New York Times

 

With the USA Failing to Ratify the 20 Year Old UN Convention on the Rights of the Child, Can You Fault Putin?

Dec29
Vladimir Putin - World Economic Forum Annual M...

Vladimir Putin – World Economic Forum Annual Meeting Davos 2009 (Photo credit: World Economic Forum)

President Vladimir Putin on Friday signed a law banning Americans from adopting Russian children.    Putin accused the United States of “acting brazenly and arrogantly” by allegedly refusing Russian officials access to adopted children who were reported to be harmed by their new US families.

The USA has done the same with Ariana-Leilani, where the German Government has requested an independent medical and psychological examination and life saving medicine for Ariana-Leilani, but the USA has refused to do so.

Putin cited Israel as an example of a country that does not send its children abroad despite domestic concerns about the security situation there.  The Israelis “always fight for their national identity”, said Putin. “They form a single fist and fight for their language and their culture.”

With the United States failing to ratify the UN Convention on the Rights of the Child, and specifically ignoring 9 year old German-American Ariana-Leilani’s right to health, can you blame Putin?

Tell President Obama to show how the USA can protect children’s rights, sign the petition to get the USA to take action to protect 9 year old Ariana-Leilani.

Your signature makes a difference.  Please sign the petition.

GoPetition

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Childrens Rights, Not Gun Rights, Needed in USA: The Case of 9 Year Old Ariana-Leilani Falling Through the Cracks in the USA

Dec20
Watch the video broadcast of PressTV, December 19, 2012, reporting on Ariana-Leilani falling through the cracks, and the US Failure to ratify the UN Convention on the Rights of the Child after 20 years.  Why does the USA give more rights to gun owners than to children?
Ariana-Leilani Discussed On Press TV

Ariana-Leilani Discussed On Press TV

PressTV Reporter Marjon Asi writes:
The right to health, life, identity and protection from abuse. These are some of the major rights outlined in the 1989 United Nations Convention on the Rights of the Child. Almost every country in the UN is bound to it- except the United States and Somalia.

The UN NGO Innocence in Danger organized a press conference addressing this issue, stating the potential harm this may have on children in the United States. 

One example of the effects of US non-membership to the global children’s rights treaty is Ariana Leilani King, a ten year old girl with dual German-American citizenship, who has medical problems that organizers state are not being properly addressed by the U.S. government. 

For many Americans, this is a major cause of embarrassment, including President Obama who vowed to revive efforts to join the treaty when he first came to office in 2009. But three years later, this remains to be seen. 

Many children’s rights advocates are speaking out against the US position, demanding that the government ratify the treaty. 

Earlier this month the US Senate also voted against joining the UN Convention on the Rights of the Disable

 

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Your signature makes a difference.  Please sign the petition.

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International Conference Convened in Geneva with Leading Experts Talk About the International Challenges of Child Protection

Dec19
Innocense In Danger Ariana-Leilani Conference

Innocense In Danger Ariana-Leilani Conference

On December 18, 2012, an exciting conference was held in Geneva on the International Convention on the Rights of the Child (CRC) and the challenges associated with measures Child Protection, using the case of Ariana-Leilani as a case study.    Speakers at the Geneva Press Club included:  Ms. Homayra Sellier, Founder and President, Innocence in Danger international • Ms. Ariel King, Founder and President, Ariana-Leilani Children’s Foundation  • Mr. Ireneo Namboka, Retired UN Human Rights Protection Officer Human Rights and Child Protection from Abuse and Neglect • Ms. Paola Riva-Gapany, Deputy Director, International Institute for Children’s Rights UNCRC and Child Protection, • Ms. Gudalupe De Iudicibus, Lawyer, Swiss Foundation of the International Social Service UNCRC –  • Ms. Silke Gutzmann, Executive Director, Innocence in Danger • Mr. Dumi Senda, Poet & Children’s Book Author

Topics included:

  •  The Convention on the Rights of the Child (CRC) and Child Protection: Report of Switzerland according to CIDE
  •  The UNCRC and International Child Protection Challenges: The Case of dual German-USA citizen Ariana-LeilaniProtection against Child abuse and neglect under the Convention International Rights of the Child.
  •  The rehabilitation of child victims of abuse thanks to summer camps
  •  The International Convention on the Rights of the Child across borders and challenges
  • The non-ratification of the United States the Convention on the Rights of the Child gives rise to the fact that children in the United States receive no internationally recognized right at human rights.
  • The day the sun promised to smile FOREVER! Playing the beginning of the original story inspired by Ariana Leilani
  • UNCRC Worldwide and Its’ Non-Ratification in the USA, International Implications
  • The Swiss Report to the UNCRC
  • International Social Services Cross Border Casework
  • Switzerland Child Abuse Rehabilitation through Children’s Summer Camps
  • “The Day the Sun Promised to Smile FOREVER!” Debut reading of an original children’s story inspired by The Little Ambassador, Ariana-Leilani* – by Dumi Senda

“The Little Ambassador” Ariana-Leilani, a German-American child with a fatal immunodeficiency disease, as well as abuse and neglect, represents all children whose human rights are violated. Ariana-Leilani coalition calls for international cooperation between the Federal Chancellor Angela Merkel and President Barack Obama to save Ariana-Leilani by submitting a petition containing over 5,000 signatures from 125 countries.

Your signature makes a difference.  Please sign the petition.

GoPetition

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Our Hearts Go Out to The Children and Parents of Newtown Connecticut; Help Avoid a Tragedy

Dec16

Words cannot express how sad we feel about the tragic loses that have occurred this past Friday in Newtown Connecticut.

On this website we fight for 9 year old Ariana-Leilani so she can live.

Support life, support love.

Help Avoid another Tragedy:

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So she can have a normal life.
So she can have a normal life.
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